I ride to create awareness for PKU, and raise funds to provide critical medical, emotional and educational services to those living with PKU! Phenylketonuria (PKU) is an inherited metabolic disease affecting the rain through increased levels of a substance called phenylalanine (Phe) in the blood. An amino acid, Phe is a building block of protein and is found in all proteins, most foods and in some artificial sweetners. There are roughly 16,500 people living with PKU in the United States today.
I was born with PKU. My treatment is a medical food that provides my protein and a special diet limited to fruit, vegetables, starches, fats and low-protein manufactured carbohydrates. This is a life-long genetic condition that left untreated would result in brain damage, seizures and behavioral complications. PKU requires me to have frequent blood testing to monitor Phe in my blood and then adjust my diet if needed.
Because of the support of my family and clinic providers, I'm on diet with good levels and able to participate in the Courage Classic to raise awareness and funds to further treatment options and provide additional support for families with PKU and other rare inherited metabolic conditions.
The Courage Classic is not only a personal challenge, but also an opportunity to support positive outcomes and a healthier future for me and others with PKU!