The other morning, I overheard a conversation between my son, Brady, and his nurse. Brady was was born with Epidermolysis Bullosa - a skin blistering disease that requires daily wound care, aggressive infection control and oversight in nearly every aspect of his life. Currently, there is no cure for Epidermolysis Bullosa (EB), and those with EB have a life expectancy that is cut short by likelihood of serious infection or cancer.
Brady’s nurse was explaining that she needed to get a flu shot after work. Brady responded “But shots hurt.” He emphatically continued, “ I get shots, too. But I LOVE my doctors.”
Brady is arguably in a constant state of pain, but the love and dedication of his medical team at Children’s Hospital of Colorado is not lost on even a three year old.
I will be (virtually) riding in the Courage Classic this year to honor my son and to honor his medical team at Children's Hospital of Colorado.
While we have high hopes that a cure for Brady is on the horizon, there is nowhere else where we would rather receive medical care in the meantime. In fact, our family moved from Texas two years ago in order to be closer to our medical team.
The expertise, passion, dedication and support isn't only given to Brady, but also to each member of our family. CHC not only cares for the patient, but also offers tremendous support for the family of the patient. CHC is uniquely aware that having a chronically ill child impacts the entire family.
Our ride has become virtual, but our momentum must continue!!
Please join me in supporting this extraordinary hospital that makes my darling son’s life with a chronic and painful disease much more bearable.