I ride to support the amazing patients and families who have been touched by an Inborn Error of Metabolism/Genetic Disorder. The money we raise supports research that helps us learn more about these rare disorders, which may lead to earlier identification, intervention and/or new treatment/management options. In addition to research the money raise helps support patients and families who have to endure the high costs of managing these disease, offers an opportunity for patients at their families to attend nationwide conferences to meet and learn from others experiencing their same daily challenges, provides an opportunity for children to attend a family camp designed just for them where they are surrounded by their peers who are "just like them."
The physicians, dietitians, genetic counselors, nurses and other support staff of this clinic work hard everyday to provide these patients opportunities that they might not otherwise have. The money raised for The Gene Team does all of this and without it, these programs would not exist or be able to continue.
The patients, families and staff of this clinic hold a very special place in my heart. I can only hope the passion I have for supporting them has been felt through my words.
Your support will make more of a difference than you can imagine.
With Sincere Appreciation and Gratitued,