At 20 weeks pregnant with our 4th child we were told there was something severely wrong with our baby's heart.
Jacob was diagnosed with a congenital heart defect called Tetralogy of Fallot, with Dextrocardia, and a Discontinuous Left Pulmonary Artery. We were shattered, no parent expects to hear that their unborn child has a life threatening issue. It was impossible to imagine that this little person was going to come into the world already fighting for his life. Jacob was born at Children's Hospital, and had his first operation at just a few days old. From the start, he decided to be 'unique'. Procedures that should have given us months to years only gave us weeks. We were in and out of the hospital every 2 weeks his first 2 months of life. Daily shots, medications, oxygen monitors, oxygen tanks, our home became a mini doctors office. And even though Jacob's anatomy continued to fight against us, his team at Children's kept fighting for him.
At a routine cardiac appointment right before Christmas, Jacob decided to make a statement, and stopped breathing. He was rushed into the CICU, medically paralyzed and intibated. Because of his unique anatomy, we found out his heart was crushing his ability to breathe. His airway was so unstable that doing anything that might agitate him would cause his airway to collapse, even while intibated.
Our only hope was Open Heart Surgery to help fix his TOF and hopefully relieve some of the pressure on his lungs. But there was no guarantee his lungs would recover from the damage. On December 26, 2018 our 2 month old little boy had open heart surgery. His recovery and growth has been nothing short of phenomenal. He is still throwing us medical curve balls, and continues to be his unique self, but he is a miracle and a happy and active 7 month old.
Through every step of this journey Jacob's Doctors, Nurses, and Therapist at the Heart Institute have been with us. They have sat with us at our lowest moments and celebrate with us at each of Jacob's victories. Jacob still has many battles to fight, and more surgeries in front of him, but because of this amazing place he has the opportunity to thrive. Thank you to all the amazing people of the Heart Institute at Children's Hospital for saving our son.
Please consider a donation, and help me raise money for this amazing organization and other kid's like Jacob.