My wife, Meredith, and I are riding the Courage Classic, together, for our daughter, Madelyn. Madelyn is an incredible little girl and a blessing to us.
Two weeks after she turned one, Madelyn was life flighted to Children's Hospital Colorado on June 5, 2009. After six days of testing and an upper GI endoscopy, Madelyn left Children's with a diagnosis of deep vein thrombosis in the portal vein (unknown cause), resulting in portal vein hypertension, an enlarged spleen and esophageal varices. The staff in every department we dealt with was wonderful and we are so thankful for Dr. Kramer in the Digestive Health Institute at Children's Hospital Colorado, who has been there for the last ten years to care for Madelyn.
Madelyn had another emergent bleed in November 2015, resulting in an upper GI endoscopy with banding of a varix and an in-patient stay, leading to a scope with banding in December at Children's Hospital Colorado, transfer of care to Houston and then Dallas and several more scopes over the last year. We are currently at the end of a 2 year span between endoscopies, with her next procedure (hopefully) in fall 2020.
This will be a lifelong journey and we are thankful for Children's Hospital Colorado for the excellent care we continue to receive, especially after relocating to Texas. Madelyn is continuing her care with Dr. Kramer at Children’s Hospital Colorado, while we have transitioned immediate care to one of Dr. Kramer's colleagues in Dallas.
We support Children's Hospital Colorado and are riding the Courage Classic for our Maddie Grace, we ride to support her and the other children and families we know.